Search found 23 matches

by JR31
Sun Oct 30, 2022 4:30 am
Forum: Tell Your Story
Topic: I need advice/my story/struggle w Hyperhidrosis
Replies: 1
Views: 1206

Re: I need advice/my story/struggle w Hyperhidrosis

Hi. As you'll likely know, there are deodorants and antiperspirants, i.e. they're two different things (although you can buy deodorants that are also antiperspirants, and vice-versa). In terms of an effective antiperspirant for underarm sweating, there is a spray called Sweat Stop which seems popula...
by JR31
Sun Apr 09, 2017 5:10 am
Forum: Glycopyrrolate (Robinul, Robinul Forte and Avert)
Topic: Avert order from Canada
Replies: 1
Views: 6012

Re: Avert order from Canada

Hi. I ordered from pharmacy.ca between probably 2003-2009 (Avert pills for compensatory hyperhidrosis, and later Secure wipes). I always found their customer service excellent, and never had any problems receiving my order to the UK. However, obviously this was a long time ago now, so perhaps it wou...
by JR31
Sun Aug 28, 2016 1:59 am
Forum: Acupuncture, Biofeedback, Deep Breathing, Hypnosis, Meditation and Other Alternative Treatments
Topic: Good article about how acupunture can help with HH
Replies: 2
Views: 16063

Re: Good article about how acupunture can help with HH

Through the years I've tried it for compensatory hyperhidrosis and more recently nerve regeneration, no noticeable effects. :( However I have managed to get fitter and healthier (losing two stones in the process) over the last two years, so I think it maybe helped with energy levels which I was grat...
by JR31
Sun Aug 28, 2016 1:53 am
Forum: Acupuncture, Biofeedback, Deep Breathing, Hypnosis, Meditation and Other Alternative Treatments
Topic: Fennel tea
Replies: 2
Views: 6723

Re: Fennel tea

Hi. No I can't say I've noticed any change. :( So, so demoralising to still be fighting this years and years later, and 10x worse than pre-surgery. :cry: How anyone can read these forums and then still want surgery is absolutely beyond me. Just starting with nettle tea (another recommended for hyper...
by JR31
Sun Jul 24, 2016 3:46 am
Forum: Oxybutynin (Ditropan) and Propantheline (Pro-Banthine)
Topic: New Oxybutynin study showing favorable results
Replies: 3
Views: 7937

Re: New Oxybutynin study showing favorable results

I took this drug brief about a dozen years ago, but although it did help my CS a bit I just found the side-effects too much (e.g. drowsiness, spaced-out feeling, dry mouth, and headaches). :( The only thing I find these days that helps at all with my CS (and with as few side-effects as possible) is ...
by JR31
Sun Jun 05, 2016 5:45 am
Forum: ETS Surgery Discussions and Post ETS Concerns
Topic: Bone resorption
Replies: 2
Views: 6475

Re: Bone resorption

Hi. I had my operations between the ages of sixteen and eighteen (so not far off twenties), and have not noticed any height loss. Likewise my bones have always seemed fine - I've been lucky in never suffering any breaks, fractures etc. :) In terms of building up bone strength as a post-ETS person, I...
by JR31
Sun May 22, 2016 5:54 am
Forum: ETS Surgery Discussions and Post ETS Concerns
Topic: Bikram/Hot yoga after ETS
Replies: 5
Views: 11875

Re: Bikram/Hot yoga after ETS

I started doing yoga (using a guided DVD) about two years ago, but after six months or so switched to tai chi; I just found myself enjoying this much more. Of course though both are supposedly great for the body, and for us with the variety of post-ETS side-effects they can surely only do us good. :...
by JR31
Sun May 08, 2016 5:16 am
Forum: ETS Surgery Discussions and Post ETS Concerns
Topic: Here comes the summer... :(
Replies: 0
Views: 8961

Here comes the summer... :(

Hi. I live in the UK, and supposedly we are in for our hottest summer in decades. :( I hate the fact that I dislike summer so much and try to avoid it as much as possible since my side-effects started fourteen years ago. Trying to be positive (such as reading self-help books) but it's just so diffic...
by JR31
Tue Mar 15, 2016 7:40 am
Forum: ETS Surgery Discussions and Post ETS Concerns
Topic: For anyone who had the ETS surgery...
Replies: 5
Views: 9087

Re: For anyone who had the ETS surgery...

Hi. Well I think over the last thirteen years I've tried the following of the prescription-strength anti-perspirants: Driclor Odaban Anhydrol Forte Sweat Stop Maxim That's all I can think of at the moment. With any of these I've only ever experienced maybe a 10%-20% reduction in CS for the worst are...
by JR31
Sun Mar 06, 2016 3:53 am
Forum: ETS Surgery Discussions and Post ETS Concerns
Topic: For anyone who had the ETS surgery...
Replies: 5
Views: 9087

Re: For anyone who had the ETS surgery...

Hi. I know exactly how you feel, the side-effects really are terrible to cope with at times. :( I've tried lots of things over the years. A long time ago I went down the medication route to try and reduce my compensatory sweating. These medications include Robinul (also known as Avert and glycopyrro...
by JR31
Mon Feb 15, 2016 8:03 am
Forum: Tell Your Story
Topic: One of the most difficult side effects to deal with CS
Replies: 3
Views: 7481

Re: One of the most difficult side effects to deal with CS

Hi. That's brilliant, really pleased you've had some success. :) As tough as things can be with CS and other post-surgery side-effects there are some good 'alternative' ideas, treatments and products out there. I guess we all just need to keep helping and educating each other eh. :) For CS I was rec...
by JR31
Mon Feb 01, 2016 12:15 pm
Forum: Tell Your Story
Topic: One of the most difficult side effects to deal with CS
Replies: 3
Views: 7481

Re: One of the most difficult side effects to deal with CS

Hi. :) I had sort of, but all I do really is just keep as hydrated as possible. Supplements containing Omega-3 (e.g. fish oil, flaxseed oil etc) are supposed to moisturise the body from the inside out, so I take 1-2 tablespoons of chia seeds a day. E45 is supposed to be good for dry skin but I'm not...
by JR31
Mon Feb 01, 2016 12:09 pm
Forum: Endoscopic Lumbar Sympathectomy (ELS)
Topic: UK experiences -- 20 cases
Replies: 1
Views: 6937

Re: UK experiences -- 20 cases

Cannot believe what I've just read. :cry: I've been through ETS and lumbar sympathectomy side-effects for fourteen years now, so I can at least take some comfort in knowing that I have built up as much experience and adaptive skills as possible in that time, but when I think of these twenty people g...
by JR31
Thu Jan 21, 2016 11:43 am
Forum: Glycopyrrolate (Robinul, Robinul Forte and Avert)
Topic: dry throat problem,HELP
Replies: 1
Views: 6166

Re: dry throat problem,HELP

Hi. It's good to hear that you're having a positive result. :) Re the dry throat, this unfortunately is quite a common side-effect of these medications. All I found you can do really is drink as much fluid as is safely possible, and sometimes I found throat sweets, lozenges etc helped (oh, and also ...
by JR31
Sun Dec 20, 2015 5:36 am
Forum: ETS Surgery Discussions and Post ETS Concerns
Topic: getting t3 t4 t5
Replies: 8
Views: 9567

Re: getting t3 t4 t5

Hi. I had ETS in 1999 and 2000. My personal experiences have not been good. It is undoubtedly effective for excessive palm sweating, but one of the many problems I've found is that it also stops you sweating from 'normal' areas like the underarms and face - vital for temperature regulation. Do a lot...