Medication Does Work! www.askapatient.com
Posted: Sat Apr 06, 2013 7:18 pm
Hi everybody.
Just a quick note on joining.
Like many of you fellow sufferers I have have spent many years researching HH, as referred to on some forums. You see that people pop in and out of forum questions over the years without much continuity and we pick up bits of info.
Great site is the International Hyperhidrosis SocIety in the USA www.sweathelp.org.
I am in the UK and we have a site www.hyperhidrosisuk.org.
I have been prescribed pro-banthine for seven years, which is very effective, but with the good old side effects. I tried Robibnul first, but probably didn't give it a fair trial. The difficulty is when we first take these drugs, the doctors don't know how much to prescribe. The secret is that everyone is different. Also, the tablets work much better on an empty stomach and taken a couple of hours before breakfast. I take 1, 15mg then a second 30 mins later.
Doctors lack of knowledge means you will have to push them to prescribe. In the UK, he can prescribe pro-banthine but will have to refer you to a dermatologist to prescribe Glycopyrrolate (Robinul) because it is not licensed in the UK.
I had found a site called www.askapatient.com which is where you can record your comments on any drug you take. It was relatively new in 2007, when I recorded how life changing the pro-banthine had been for me. Hyperhidrosis info was so spread about I hoped it would come up when people googled etc. It had a few comments recorded for Robinul.
PLEASE GO TO THE SITE WWW.ASKAPATIENT.COM NOW AND SEE 109 LIFE CHANGING STORIES. JUST TYPE IN ROBINUL OR USE THE A-Z. PRO-BANTHINE (Propanthelene), DITROPAN +OXYTROL (OXYBUTYNIN) ARE ALSO THERE.(ALL ANTICHOLINERGICS)
There have been so many, it looks like those from the site set up in 2003 to 2009 have been deleted!
Hyperhidrosis looks like a physical fault in the brain or chemical/hormone neurotransmitter imbalance and affects us to different degrees. I don't think there is a cure. But the side effects of the medication can be worth getting your life back.
I am a 57 year old male, still looking for a better balance with medication. I am about to see my Dermatologist, it may take a few months to get an appointment, to try the Robinul again and maybe Tranexene as mentioned on this site. I am sure it is a matter of time, trial and error by us sufferers, sharing information, and somehow bringing all this forum info and worldwide info together.
It takes us years to even realise what the problem is, then ages to get a doctor to listen to us, and then persuade them to consider giving us drugs not officially tested for HH. The drugs need to interrupt the signals making us sweat. Whether that is caused by reacting to physical exertion, little or small, or mental reaction to stress or social meetings.
Hope it's of some use.
Keith
Just a quick note on joining.
Like many of you fellow sufferers I have have spent many years researching HH, as referred to on some forums. You see that people pop in and out of forum questions over the years without much continuity and we pick up bits of info.
Great site is the International Hyperhidrosis SocIety in the USA www.sweathelp.org.
I am in the UK and we have a site www.hyperhidrosisuk.org.
I have been prescribed pro-banthine for seven years, which is very effective, but with the good old side effects. I tried Robibnul first, but probably didn't give it a fair trial. The difficulty is when we first take these drugs, the doctors don't know how much to prescribe. The secret is that everyone is different. Also, the tablets work much better on an empty stomach and taken a couple of hours before breakfast. I take 1, 15mg then a second 30 mins later.
Doctors lack of knowledge means you will have to push them to prescribe. In the UK, he can prescribe pro-banthine but will have to refer you to a dermatologist to prescribe Glycopyrrolate (Robinul) because it is not licensed in the UK.
I had found a site called www.askapatient.com which is where you can record your comments on any drug you take. It was relatively new in 2007, when I recorded how life changing the pro-banthine had been for me. Hyperhidrosis info was so spread about I hoped it would come up when people googled etc. It had a few comments recorded for Robinul.
PLEASE GO TO THE SITE WWW.ASKAPATIENT.COM NOW AND SEE 109 LIFE CHANGING STORIES. JUST TYPE IN ROBINUL OR USE THE A-Z. PRO-BANTHINE (Propanthelene), DITROPAN +OXYTROL (OXYBUTYNIN) ARE ALSO THERE.(ALL ANTICHOLINERGICS)
There have been so many, it looks like those from the site set up in 2003 to 2009 have been deleted!
Hyperhidrosis looks like a physical fault in the brain or chemical/hormone neurotransmitter imbalance and affects us to different degrees. I don't think there is a cure. But the side effects of the medication can be worth getting your life back.
I am a 57 year old male, still looking for a better balance with medication. I am about to see my Dermatologist, it may take a few months to get an appointment, to try the Robinul again and maybe Tranexene as mentioned on this site. I am sure it is a matter of time, trial and error by us sufferers, sharing information, and somehow bringing all this forum info and worldwide info together.
It takes us years to even realise what the problem is, then ages to get a doctor to listen to us, and then persuade them to consider giving us drugs not officially tested for HH. The drugs need to interrupt the signals making us sweat. Whether that is caused by reacting to physical exertion, little or small, or mental reaction to stress or social meetings.
Hope it's of some use.
Keith