All I can find online is that this is a rare condition and affecting babies and children. Nothing about whether this had an adult-onset equivalent. Might it only be rare because the research has been rare? All the stuff online is rare and very old. How would I find out any specialists in the UK or people at the forefront of research (if any?)
And yet the description of sweating below a certain temperature is so true for me. Somebody just has to open a door and let cold air in and I sweat terribly or if I wash my hair it is damp for ages and pouring with sweat.
I would love to hear from anyone else in the same boat. Mine was triggered around the menopause and not much has helped except warm weather. Other triggers for HH are anxiety and exertion. I also have M.E. fibromyalgia and autism among other conditions.
Many thanks