No one knows what it's like...

Introduce yourself and share your personal hyperhidrosis related experiences.
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drowned
Posts: 1
Joined: Sat Jan 28, 2012 8:40 pm

No one knows what it's like...

Post by drowned »

Hi! My name's Em and I'm twelve years old. I've had Hyperhidrosis as long as I can remember and my parents think that I got it from having Lyme Disease. I have it REALLY bad on my hands, feet, armpits, and my upper lip.
Since I'm only in seventh grade, things are really hard for me. I go to school really scared everyday. When someone tries to give me a high five (which happens very often), I have to pretend like I didn't see their hand because I don't want them to feel my hands and say something. I also try to avoid hand shakes as often as I can for the same reason. Also, my papers always get soaking wet. In gym, whn we have to do pull ups everyone thinks I'm really weak because my hands jut slip right off the bar. I can't opn a marker for the same reason. If someone says something, the only thing that I feel strong enough to do is cry.
About six months ago, I realized that everyone treats me TERRIBLY. For example, at the lunch table the seats next to me are the last ones sat in. Just knowing that my 'friends' don't want to sit next to me because of it breaks my heart. Going through the millions, literally, millions of other symptoms smash it.
Whenever I try to talk about it, all I can do is cry. I tell my mom that she doesn't know what it 's like, but she says that she does and that she sees what I go through. Let me tell you, she hasn't seen ANYTHING. No one knows what it's like. You only know what it's like to feel drowned in your own sweat and soaking all day if you have this. I can't wear like 85 percent of clothes because they don't observe me sweat when I'm constantly try to wipe it on even clothes that 'work', and I can't wear literally 99.9 percent of socks because they make my feet feel yucky. I would carry around my dishcloth all day (which feels SO good), but people would think that's weird. People think sweaty hands are disgusting, but if they were to step into our shoes they would probably kill themselves, really. I think that people with Hyperhidrosis are the strongest people on Earth.
So, I've tried drysol and putting antiperspirant deodorant on my hands, feet, and armpits, but it doesn't work at all. Does anyone have any treatment suggestions? Also, how much does that surgery cost? Does anyone ave any encouraging messages for me?

droid
Posts: 9
Joined: Sat Jan 07, 2012 8:56 am

Re: No one knows what it's like...

Post by droid »

Hi Drowned,

Yes I know how it's like. You may check out my post here to see my experiences with this condition:
http://www.no-ets.com/forums/viewtopic.php?f=26&t=994
I think that people with Hyperhidrosis are the strongest people on Earth.
I had this exact same thought before. Those afflicted will go insane or kill themselves if they aren't strong enough to handle the situation.


Which part of the world are you from, and have you consulted a specialist about this?

iiS
Posts: 17
Joined: Wed Feb 01, 2012 12:56 am

Re: No one knows what it's like...

Post by iiS »

Dear Em,

I know exactly what you are talking about.. because I passed through it… and it affected my social life...

However, I just wanted to comment regarding your feet sweating / slipping,,,

In general,, to lessen sweating you need to wear COTTON clothes,, avoid all synthetic material which touch your skin..

Sox need to be cotton to avoid having this slippery feeling (and lessen sweating little bit), also preferred to have them dark colored so sweat will not appear on them as wet marks.

I am now 38 and thinking about the ETS procedure if its cost is affordable and if I found not risky (still doing my search). Lately, I heard (not sure) that it can be made at the “rest” of the hand rather than at the (back/spine/behind the lungs) which I believe is dangerous area.

Wish all the best

JBflies
Posts: 8
Joined: Sun Oct 23, 2011 5:53 pm

Re: No one knows what it's like...

Post by JBflies »

Em, you are definitely not alone. You are absolutely right that very few people actually know what it is like to live with sweaty hands, feet, etc. We differ in that I have had hyperhidrosis only on my hands and feet, but I have had many of the similar experiences as you in trying to cover up the sweat and feel your pain. Hi-fives were intolerable in high school, and my school papers were often deformed because of sweat. You are at a young age where you can't necessarily fund treatment for yourself, but If I could offer some advice, it would be to talk to anyone who will listen (parents, grandparents, school counselor etc) and seek some form treatment. If you haven't already, start by reading this no-ets website in its entirety because Admin has done a terrific job of presenting both sides of every treatment. I wish you the best in whatever avenue of treatment you pursue.

-JB

chocolate-milk
Posts: 12
Joined: Mon Dec 10, 2012 12:45 pm

Re: No one knows what it's like...

Post by chocolate-milk »

I think you should have a look at a product called AHC forte, its for hyperhydrosis of the palms and feet. Here's the link to the page: http://www.scrubsuk.com/hyperhidrosis/a ... sic-3.html
I hope this works as well for you as it has for me! Good luck ;)

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