18 and dealing with HH confidently?
Posted: Sun Feb 10, 2013 8:32 am
Hello everybody
This is avantika from india. i am an 18 yr old girl and as u can guess i am also a victim of the deadly HH. I have been living with HH for nearly a decade . And yes i have surely been disgusted with this ailment. Its hard to live the everyday life . Difficult to write exams and take part in tasks that require my hands and feet so i avoid them as much as possible although i cant avoid the exams! :/ But till date i have been living confidently. I have seen in many HH patients' lack of confidence and increased anxiety and i have also seen it in myself. but this wont help us . As i suffer from the worst form of HH i have accepted life. I am just 18 and have a long way to go in life . I have ambitions that certainly require my hands and feet to work .So everytime the thought of HH comes to mind i try to chuck it . Thats the only way i can manage to live a little more happier life. I do have limitations like all of u. Cant wear slippers or sandals can't use touchphones can't go out without a hanky in my hand(a large one) can't shake hands with people or give a high-5 to my buddies.and so many more the list is long enough and i m sure u already know all of it .But thinking about this makes me feel worse. Yet i am a good speaker i take part in competitions i socialise with people well and i have many friends. Many people ask me about my abnormal palms and why i am always to be seen in shoes and without any hesitation i tell them about my insignificant yet life-changing disorder . i dont give a damn to people who find me abnormal or make fun of me(yes some are rude enough to make fun of HH) .So thats my story. this is how i deal with everbody around me.
This is avantika from india. i am an 18 yr old girl and as u can guess i am also a victim of the deadly HH. I have been living with HH for nearly a decade . And yes i have surely been disgusted with this ailment. Its hard to live the everyday life . Difficult to write exams and take part in tasks that require my hands and feet so i avoid them as much as possible although i cant avoid the exams! :/ But till date i have been living confidently. I have seen in many HH patients' lack of confidence and increased anxiety and i have also seen it in myself. but this wont help us . As i suffer from the worst form of HH i have accepted life. I am just 18 and have a long way to go in life . I have ambitions that certainly require my hands and feet to work .So everytime the thought of HH comes to mind i try to chuck it . Thats the only way i can manage to live a little more happier life. I do have limitations like all of u. Cant wear slippers or sandals can't use touchphones can't go out without a hanky in my hand(a large one) can't shake hands with people or give a high-5 to my buddies.and so many more the list is long enough and i m sure u already know all of it .But thinking about this makes me feel worse. Yet i am a good speaker i take part in competitions i socialise with people well and i have many friends. Many people ask me about my abnormal palms and why i am always to be seen in shoes and without any hesitation i tell them about my insignificant yet life-changing disorder . i dont give a damn to people who find me abnormal or make fun of me(yes some are rude enough to make fun of HH) .So thats my story. this is how i deal with everbody around me.