26yo with lifelong HH
Posted: Fri Mar 15, 2013 10:28 am
Hello,
I'm sad that it took me so long to find this online community of fellow suffers of HH! I'm 26 years old and have had severe hand and feet sweating since I can remember and my mother tells me it's been going on since I was an infant. I've gotten real good at hiding it, like most people with HH, which is probably why I've never known anyone with it and had no idea there were so many people like me. I'm very excited to try some/all of the treatments/remedies listed in this forum and hopefully something will work for me. I've tried Drysol a few times.. when I was 10, 16, and 23 and had no luck with any of those attempts, but it's the only thing I was ever told about by my doctors. I just recently switched to a new Doc and she seems very interested and willing to help, she of course hasn't seen many cases of HH either and Drysol was the first thing she suggested. She is willing to refer me to a surgeon in Seattle that does ETS, but when I researched it I found this forum and am definitely trying to avoid it unless nothing else works for me. I feel like I have lived with this long enough and it has kept me from doing a lot of things I've been interested in, i.e. playing guitar (rusty strings), art/drawing (soggy paper), a career in electronics (obvious reasons), etc.
So there's my back story, I'm hoping I can get some suggestions of what to try in order since I am new to treatments for HH. I'm planning on trying the chamomile tea thing I read on here and adding some sage extracts first, because it seems like it would have the least potential side effects, plus drinking tea everyday sounds awesome to me. What should I try and get a prescription of? I read about Tranxene and Robinul. Is there one that would be better to try first? or any others I haven't read about yet.
Thanks for any help! I dream of a day I can wear flip flops, shake people's hands with confidence, and not have to buy new shoes every few months..
I'm sad that it took me so long to find this online community of fellow suffers of HH! I'm 26 years old and have had severe hand and feet sweating since I can remember and my mother tells me it's been going on since I was an infant. I've gotten real good at hiding it, like most people with HH, which is probably why I've never known anyone with it and had no idea there were so many people like me. I'm very excited to try some/all of the treatments/remedies listed in this forum and hopefully something will work for me. I've tried Drysol a few times.. when I was 10, 16, and 23 and had no luck with any of those attempts, but it's the only thing I was ever told about by my doctors. I just recently switched to a new Doc and she seems very interested and willing to help, she of course hasn't seen many cases of HH either and Drysol was the first thing she suggested. She is willing to refer me to a surgeon in Seattle that does ETS, but when I researched it I found this forum and am definitely trying to avoid it unless nothing else works for me. I feel like I have lived with this long enough and it has kept me from doing a lot of things I've been interested in, i.e. playing guitar (rusty strings), art/drawing (soggy paper), a career in electronics (obvious reasons), etc.
So there's my back story, I'm hoping I can get some suggestions of what to try in order since I am new to treatments for HH. I'm planning on trying the chamomile tea thing I read on here and adding some sage extracts first, because it seems like it would have the least potential side effects, plus drinking tea everyday sounds awesome to me. What should I try and get a prescription of? I read about Tranxene and Robinul. Is there one that would be better to try first? or any others I haven't read about yet.
Thanks for any help! I dream of a day I can wear flip flops, shake people's hands with confidence, and not have to buy new shoes every few months..