A questionnaire for all who had lumbar sympathectomy
Posted: Thu Oct 31, 2013 12:55 am
It seems that the number of people who had lumbar sympathectomy is still very low. The latest articles from the surgeons who perform ELS analyze the results from 10-100 sympathectomies. It may be a good idea to collect some objective info about the experience before and after the surgery from "real" people who had the surgery. It may help create a larger picture and help people making very important decisions. I propose the following questionnaire:
When did you have the surgery? Who was your surgeon? What type of surgery was it?
How problematic was your feet sweating before the surgery? Did conventional non-invasive therapy (iontopheresis, antiperspirants, antidepressants, ...) help?
What are the results of the surgery? Are there any side effects?
Did you have/do you have any other sympathetic nervous system related problems? Did you suffer from any major medical problems which could potentially contribute to HH?
Did you have ETS (when, which surgeon, which ganglia)? If you did: What problems did it cure? What side effects did it cause?
What is the present state of palmar/plantar/facial sweating and facial blushing now?
Do you have any relatives who also suffer from HH or FB?
Anything else you want to add?
Here are my answers:
When did you have the surgery? Who was your surgeon? What type of surgery was it?
April 2013, dr. Tarfusser, endoscopic bilateral L3 with clips.
How problematic was your feet sweating before the surgery? Did conventional non-invasive therapy (iontopheresis, antiperspirants, antidepressants, ...) help?
Horrible, the feet started dripping with sweat at the moment that I woke up and they stopped just before I went to bed. Yes, iontopheresis and antiperspirants helped a lot, but, the results were very unpredictable. Following the same treatment regime the feet could be either dry, moderately sweaty or dripping with sweat.
What are the results of the surgery? Are there any side effects (CS, neuralgia, urinary or *** problems)?
Dry feet. No side effects so far. I am not sure, but, my CS may start a little sooner than before.
Did you have/do you have any other sympathetic nervous system related problems? Did you suffer from any major medical problems which could potentially contribute to HH?
Before ETS I had the same problems with palm sweating. Palms and feet used to start and stop sweating at the same time with the same intensity. No other problems.
Did you have ETS (when, which surgeon, which ganglia)? If you did: What problems did it cure? What side effects did it cause?
Yes, in September 1997, dr. Tarfusser, both T2 cut. It cured my palmar sweating. A bit lower heart rate which causes no problems. I developed some CS which is non-existent in "normal" conditions but can get bothersome on hot & humid days or during minimal physical activity.
What is the present state of palmar/plantar/facial sweating and facial blushing now?
The surgeries completely cured my HH. The feet are completely dry and my palms now sweat as they are supposed to.
Do you have any relatives who also suffer from HH or FB?
Yes, my both parents and my only sister suffer from palmo-plantar HH. No other relatives seem to have this problem.
Anything else you want to add?
When did you have the surgery? Who was your surgeon? What type of surgery was it?
How problematic was your feet sweating before the surgery? Did conventional non-invasive therapy (iontopheresis, antiperspirants, antidepressants, ...) help?
What are the results of the surgery? Are there any side effects?
Did you have/do you have any other sympathetic nervous system related problems? Did you suffer from any major medical problems which could potentially contribute to HH?
Did you have ETS (when, which surgeon, which ganglia)? If you did: What problems did it cure? What side effects did it cause?
What is the present state of palmar/plantar/facial sweating and facial blushing now?
Do you have any relatives who also suffer from HH or FB?
Anything else you want to add?
Here are my answers:
When did you have the surgery? Who was your surgeon? What type of surgery was it?
April 2013, dr. Tarfusser, endoscopic bilateral L3 with clips.
How problematic was your feet sweating before the surgery? Did conventional non-invasive therapy (iontopheresis, antiperspirants, antidepressants, ...) help?
Horrible, the feet started dripping with sweat at the moment that I woke up and they stopped just before I went to bed. Yes, iontopheresis and antiperspirants helped a lot, but, the results were very unpredictable. Following the same treatment regime the feet could be either dry, moderately sweaty or dripping with sweat.
What are the results of the surgery? Are there any side effects (CS, neuralgia, urinary or *** problems)?
Dry feet. No side effects so far. I am not sure, but, my CS may start a little sooner than before.
Did you have/do you have any other sympathetic nervous system related problems? Did you suffer from any major medical problems which could potentially contribute to HH?
Before ETS I had the same problems with palm sweating. Palms and feet used to start and stop sweating at the same time with the same intensity. No other problems.
Did you have ETS (when, which surgeon, which ganglia)? If you did: What problems did it cure? What side effects did it cause?
Yes, in September 1997, dr. Tarfusser, both T2 cut. It cured my palmar sweating. A bit lower heart rate which causes no problems. I developed some CS which is non-existent in "normal" conditions but can get bothersome on hot & humid days or during minimal physical activity.
What is the present state of palmar/plantar/facial sweating and facial blushing now?
The surgeries completely cured my HH. The feet are completely dry and my palms now sweat as they are supposed to.
Do you have any relatives who also suffer from HH or FB?
Yes, my both parents and my only sister suffer from palmo-plantar HH. No other relatives seem to have this problem.
Anything else you want to add?